|
NO.
|
Title
|
Main author
|
Title of the
Periodical
|
Volume
|
Place of
publication
|
Year of
publication
|
Permanent
Identifier
|
|
1
|
Is physiological glucocorticoid replacement important in
children?
|
Porter J
|
Archives of Disease in Childhood
|
[Epub ahead of print Aug 2016]
|
BMJ Publishing Group Ltd
|
2016
|
http://adc.bmj.com/content/early/2016/08/31/archdischild-2015-309538.full.pdf+html
|
|
2
|
Development and testing in healthy adults of oral hydrocortisone
granules with taste masking for the treatment of neonates and
infants with adrenal insufficiency
|
Whitaker MJ
|
Journal of Clinical Endocrinology
and Metabolism
|
Vol. 100 (No.4); April 2015
|
Endocrine Society
|
2015
|
http://press.endocrine.org/doi/pdf/10.1210/jc.2014-4060
|
|
3
|
Salivary cortisone reflects cortisol exposure under
physiological conditions and after hydrocortisone
|
Debono M
|
Journal of Clinical Endocrinology and Metabolism
|
Vol. 101 (No.4); April 2016
|
Endocrine Society
|
2016
|
http://press.endocrine.org/doi/pdf/10.1210/jc.2015-3694
|
|
4
|
A model for measuring the health burden of classic congenital
adrenal hyperplasia in adults
|
Hummel SR
|
Clinical Endocrinology
|
Vol. 85; September 2016 (Epub ahead of print April 2016)
|
John Wiley & Sons, Inc
|
2016
|
http://onlinelibrary.wiley.com/doi/10.1111/cen.13060/pdf
|
|
5
|
A meta-analysis of the effects of age and meal type on gastric
emptying in premature neonates through to adults
|
Bonner J
|
Biopharmaceutics and Drug Disposition
|
Vol. 36; (Epub ahead of print February 2015)
|
John Wiley & Sons, Inc
|
2015
|
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5023994/pdf/BDD-36-245.pdf
|
|
6
|
Androgens correlate with increased erythropoiesis in women with
congenital adrenal hyperplasia
|
Karunasena N
|
Clinical Endocrinology
|
[Epub ahead of print June 27 2016]
|
Wiley
|
2016
|
http://onlinelibrary.wiley.com/doi/10.1111/cen.13148/pdf
|
|
7
|
Salivary cortisol and cortisone in the clinical setting
|
Blair J
|
Curr Opin Endocrinol & Diabetes
|
Submitted
|
Chapman and Hall
|
2017
|
|
|
8
|
Adrenal insufficiency in young children: the parent's
perspective
|
Simpson A
|
TBC
|
In preparation
|
TBC
|
TBC
|
|
|
9
|
New approaches to glucocorticoid replacement
|
Ross R
|
ESPE Abstracts
|
Vol. 86
|
European Society for Paediatric Endocrinology Annual Meeting,
10-12 September 2016; Paris, France
|
2016
|
Peer reviewed abstract: http://abstracts.eurospe.org/hrp/0086/hrp0086s9.2.htm
|
|
10
|
A new international registry highlights the differences in
practice for reaching a diagnosis of CAH
|
Kourime M
|
ESPE Abstracts
|
Vol. 86
|
European Society for Paediatric Endocrinology Annual Meeting,
10-12 September 2016; Paris, France
|
2016
|
Peer reviewed abstract: http://abstracts.eurospe.org/hrp/0086/hrp0086p1-p356.htm
|
|
11
|
The psychosocial impact of adrenal insufficiency and congenital
adrenal hyperplasia on children and their parents
|
Simpson A
|
ESPE Abstracts
|
Vol. 86
|
European Society for Paediatric Endocrinology Annual Meeting,
10-12 September 2016; Paris, France
|
2016
|
Peer reviewed abstract: http://abstracts.eurospe.org/hrp/0086/hrp0086p1-p25.htm
|
|
12
|
Patients with congenital adrenal hyperplasia have significantly
higher healthcare utilisation than the general paediatric
population
|
Porter J
|
ESPE Abstracts
|
Vol. 86
|
European Society for Paediatric Endocrinology Annual Meeting,
10-12 September 2016; Paris, France
|
2016
|
Peer reviewed abstract: http://abstracts.eurospe.org/hrp/0086/hrp0086p2-p73.htm
|
|
13
|
Adrenal crisis and sick day episodes among CAH patients:
preliminary report based on International CAH (I-CAH) registry
|
Karunasena N
|
Endocrine Abstracts
|
Vol. 41
|
European Congress of Endocrinology, 28-31 May 2016, Munich,
Germany
|
2016
|
Peer reviewed abstract:
http://www.endocrine-abstracts.org/ea/0041/ea0041ep14.htm
|
|
14
|
Congenital adrenal hyperplasia: parents' experiences of treating
their child's condition
|
Simpson A
|
Endocrine Abstracts
|
Vol. 41
|
European Congress of Endocrinology, 28-31 May 2016, Munich,
Germany
|
2016
|
Peer reviewed abstract: http://www.endocrine-abstracts.org/ea/0041/ea0041gp140.htm
|
|
15
|
Semi-mechanistic modelling of the non-linear hydrocortisone
pharmacokinetics to enable extrapolation into paediatric
patients
|
Melin J
|
PAGE Abstracts
|
2016 volume
|
Meeting of the Population Approach Group in Europe, 7-10 June
2016. Lisboa, Portugal
|
2016
|
Peer-reviewed abstract:
http://www.page-meeting.org/page/page2016/PAGE2016Abstracts.pdf
|
|
16
|
Salivary cortisone is a suitable alternative to measuring serum
cortisol under physiological conditions and after hydrocortisone
administration
|
Debono M
|
NA
|
NA
|
ENDO Annual Meeting, 1-4 April 2016, Boston, MA, USA
|
2016
|
Peer-reviewed abstract
http://press.endocrine.org/doi/10.1210/endo-meetings.2016.AHPAA.13.SUN-410
|
|
17
|
Optimization of hydrocortisone treatment in children with
congenital adrenal hyperplasia (CAH) with home 17 OHP-saliva
sampling: feasibility and effectiveness
|
Neumann U
|
NA
|
NA
|
ENDO Annual Meeting, 1-4 April 2016, Boston, MA, USA
|
2016
|
Peer-reviewed abstract:
http://press.endocrine.org/doi/10.1210/endo-meetings.2016.PE.11.OR08-2
|
|
18
|
Paediatric endocrinologists' survey on current glucocorticoids
treatment of adrenal insufficiency in neonates and infants and
development of Infacort®
|
Ross RJ
|
NA
|
NA
|
ENDO Annual Meeting, 5-8 March, San Diego, CA, USA
|
2015
|
Peer-reviewed abstract
http://press.endocrine.org/doi/10.1210/endo-meetings.2015.PE.5.SAT-147
|
|
19
|
Exploring the psychosocial impact of congenital adrenal
hyperplasia on children and their parents
|
Simpson A
|
Endocrine Abstracts
|
Vol. 37
|
European Congress of Endocrinology, 16-20 May 2015, Dublin,
Ireland
|
2015
|
Peer reviewed abstract: http://www.endocrine-abstracts.org/ea/0037/ea0037ep115.htm
|
|
20
|
Modelling the salivary cortisone to serum cortisol
inter-relationship to predict serum cortisol under physiological
conditions and after hydrocortisone
|
Debono M
|
Endocrine Abstracts
|
Vol. 37
|
European Congress of Endocrinology, 16-20 May 2015, Dublin,
Ireland
|
2015
|
Peer-reviewed abstract http://www.endocrine-abstracts.org/ea/0037/ea0037oc9.3.htm
|
|
21
|
The burden of illness of congenital adrenal hyperplasia in the
United Kingdom: a retrospective, observational study
|
Jenkins-Jones S
|
Value in Health
|
Vol. 18
|
ISPOR, 7-11 November 2015, Milan, Italy
|
2015
|
Peer reviewed abstract:
http://www.valueinhealthjournal.com/article/S1098-3015(15)04977-3/pdf
|
|
22
|
Infacort®, oral hydrocortisone granules with taste
masking for the treatment of neonates and infants with adrenal
insufficiency
|
Whitaker MJ
|
NA
|
NA
|
ICE/ENDO, 21-24 June, 2014, Chicago, IL, USA
|
2014
|
Peer-reviewed abstract:
http://press.endocrine.org/doi/10.1210/endo-meetings.2014.PE.1.SUN-0128
|
|
23
|
Development of oral hydrocortisone granules with taste masking
for the treatment of neonates and infants with adrenal
insufficiency
|
Ross R
|
Endocrine Abstracts
|
Vo. 35
|
European Congress of Endocrinology, 3-7 May, 2014, Wroclaw,
Poland
|
2014
|
Peer-reviewed abstract: http://www.endocrine-abstracts.org/ea/0035/ea0035p30.htm
|
|
24
|
Medication safety study investigating hydrocortisone
individually and extemporaneously compounded capsules for
paediatric use in CAH
|
Kauzor D
|
Endocrine Abstracts
|
Vol. 35
|
European Congress of Endocrinology, 3-7 May, 2014,
Wroclaw, Poland
|
2014
|
Peer reviewed abstract: http://www.endocrine-abstracts.org/ea/0035/ea0035p825.htm
|
|
25
|
TAIN - treatment of adrenal insufficiency in neonates and
infants
|
Whitaker MJ
|
NA
|
NA
|
International Rare Diseases Research
Consortium (IRDiRC Conference, 16-17 April, 2013, Dublin,
Ireland)
|
2013
|
Peer-reviewed abstracts:
http://www.irdirc.org/wp-content/uploads/2013/06/3-4-b-IRDIC-Catalogues-abstracts-60p.pdf
|
|
26
|
Does age affect gastric emptying? A model-based meta-analysis of
gastric emptying times in premature neonates through to adults
|
Bonner J
|
14th ESDPPP abstract book
|
NA
|
Biannual Congress of the European
Society for Developmental Perinatal and Paediatric Pharmacology
(ESDPPP), 4-7 June, 2013, Salzburg, Austria
|
2013
|
Peer-reviewed abstract
http://www.esdppp.org/site/wp-content/uploads/2013/06/ESDP%20ibook%20final%201.1%20light.pdf
|